Dancing on marbles

Life is one big precarious attempt to not tumbling ass over teakettle, I am now convinced. And I’m trying to see the joy in the slapstick of walking boldly across a slick path made unpredictable with hundreds of marbles. Because every time I’m posed to post on this very spot about something lovely, I’m walloped upside the head with something decidedly unlovely.

And every time I want to wallow in the unlovely, something decidedly lovely distracts me.

You are likely aware, if you’ve been reading here for a while, that my gobsmackingly awesome children are finally starting to get along. Wise friends with three boys told me that once the little guy hit Four it would get better. And it has (with all the caveats about the fact that three people in the same house, none of whom has much emotional control, are rarely in the same mood and on the same page). Sometimes, now, when the first pats of butter-yellow light slip through their blinds and plop onto their beds each morning, Peanut and Butter wake up willing to engage in silly, playful interactions rather than surly, bickering nastiness. Sometimes. And that has increased the quality of life around here immeasurably.

Part of the boys’ getting along more probably roots in the fact that their Dad and I are being much calmer now that we’ve decided not to live together. Less struggle begets less struggle. So far. When there is tangible paternal-absence and marked maternal-lack-of-running-time, when the there might be a struggle or two. See the above metaphor about making steady progress along a marble-strewn path.

I’m sure that, in part, the boys’ kindness to one another stems from a fabulous trip to Boston. We walked the Charles, we spent our tourist dollars at Marathon Sports on Boylston. We ate good food (my GAWD I’ve missed Red Bones) and we practically lived on the T. We cheered for marathoners until we were hoarse. We even offered our fluffernutters to the many, many police working the course on Patriot’s Day. (One indignant Statie told me he already had his peanut butter with jelly, thank you. And then I believe he was fired for inMassabordination.) We spent time like a family, and it was good for everyone.

Part of the increased sibling harmony also stems from a deep sadness that has stilled my otherwise frenetic pace. The death of my friend has brought a rather large dollop of “I don’t care about anything any more” to my endless to-do lists and my frantic need to prove myself worthy through incessant activities.

As we made it through the memorial, we found out that a mutual friend, who was diagnosed with leukemia around the same time Jay had his first surgery, has relapsed. This little boy, who spent kindergarten in Children’s Hospital enduring rounds and rounds of chemo, and whose family learned a gratitude few of us will ever fathom, enjoyed first- and second-grade without cancer. Now his leukemia is back. He’s going through a couple of weeks of chemo before a bone marrow transplant.  We’re all trying coming together as a community, again, to get people checked, at no cost, to see if they’re matches for any of the many Americans in need of bone marrow. And maybe, if enough people get the free test, we can find our little guy a match!

So that’s exciting. If you’re one of the people who’s into bright sides and finding the joy of surfing the marble-covered path to tomorrow, it’s enlivening to have a purpose. To help. To appreciate and breathe and put one foot in front of the other. Nothing brings me out of “what’s the point” like a bone marrow drive.

Go hug your family. Email your friends and tell them you love them. Take a deep breath each morning, and relish what’s good.

And consider being tested to see if you’re a match for, and can help give a great life to, a sweet little boy.

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https://www.facebook.com/amatchforbay

 

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Batkid’s Mom

Oh how I cried today following the escapades of the miraculous little boy whose leukemia is in remission and who asked the Make a Wish Foundation to make him Batman.

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San Francisco complied in muthafugging spades, y’all. Told they could make a dream come true, the best city in the world said, “oh, we can do better than that.” The red carpet was rolled out for the caped crusader, and his family watched as more than 12,000 of our desperately kind residents played along and cheered for mocked up superhero situations.

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The Department of Justice joined in. The FBI. The S.F. Giants. The President of the United States. All cheering for a boy who pretend-saved the city, because we all knew that he actually made it through a terrible, life-threatening disease.

And in every photo, I sobbed at two particular images: his family and the crowds.

I started crying when I saw Batkid’s brother, dressed as Robin, because leukemia is hard on siblings, too. Like all major illness it puts parents in a precarious position of needing to give one child 150% and needing to find another 100% for the healthy sibling. So I cried for Batkid’s brother, whom I’m positive is loved and doted upon, but who also went through family turmoil with that leukemia.

I wept for Batkid’s father. The guy who wanted to be Batman all along, to have superpowers and carry his family away from the pain and the fear and the chemo and the private life lived publicly in a hospital. I cried for how powerless they probably felt during the whole, terrible, awful ordeal. And for how fear probably creeps in at night, reminding both of the adults that remission is a wonderful but terrifying word.

And how I sobbed for Batkid’s mother. Just as powerless as dad and just as hopeful for a superhero miracle. Full of love and fear and anger and hope and exhaustion and sadness from the moment of diagnosis. Oh, I can’t imagine. Batkid was diagnosed with leukemia at 20 months and just finished his last round of chemo. One single minute of your child with cancer is too much. Even one minute of waiting for test results and waiting for donors and waiting as hospital takes blood from your kid to tell you if he’s going to live is just too many minutes. One is far too many for anyone to endure. So I cried for Batkid’s mom and for all the moms.

And I cried for our friend who went through a similar diagnosis and terrifying year of medical upheaval, too. And who now has a wonderful, healthy family and for whom I can’t even articulate my joy and sorrow and pride because it’s all just too big.

Yes, it’s glorious that a whole city put aside business to cheer for a child. We have heard so much of bickering and governments paralyzed with petulance, death and destruction and famine and global weather catastrophes…it was heavenly to just cheer. And cheer and cheer and cheer for a classic triumph of good over evil.

But damn I cried for Batkid’s mother and father and brother. And for him. I cried for Miles. I’m so glad Make a Wish executed this amazing feat. I’m so proud of San Francisco for transforming from a warm, welcoming city to the model of compassion and heart. I’m so thrilled for Miles and his family that he’s healthy.

I’m just so grateful for something to cheer for.

Go donate to Make a Wish. And to the Leukemia and Lymphoma Society. And to the typhoon victims. And contribute to every bit of kindness you can in this world, because gawd it was nice to have Batkid Day today.

Sixth birthday edition

There are no words to express my surprise that we made it to age 6.

I have two thoughts for you, in honor of the many things my incredible child has taught me. Ready?

Plan activities for birthday parties that assume you will only get useful participation and energy for 7 minutes. That means a two-hour party needs *at least* fifteen planned activities. This time I achieved that planning goal, and we had a fabulous party and only one leftover activity. (I got lazy after decorate your own cupcakes and let him open presents. I know some parents say no way to opening in front of other kids, but I say “that’s seven minutes right there.”

And?

Kiss your kids every day that they’re here. A wonderful six-year-old friend was just diagnosed with leukemia and I don’t even want to think about things like that. So I’ll work on my patience and work on playing even more with my kids than I already do, and I’ll kiss them every single day they’re alive.

How’s that for a little party-planning and mortality blog post? At least you know you’re in the right place.

Naptime Writing, where our motto is “making things the opposite of easy for at least six years.”